Why Do Parents of Children with Autism Spectrum Disorder Have Lower Well-Being Than Typical Parents? An Analysis Based on Social Support, Psychological Resilience, and Parenting Stress

Zheng Jianhong, Huang Jingmin, He Chenglin

Journal of Psychological Science ›› 2025, Vol. 48 ›› Issue (6) : 1418-1428.

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Journal of Psychological Science ›› 2025, Vol. 48 ›› Issue (6) : 1418-1428. DOI: 10.16719/j.cnki.1671-6981.20250611
Developmental & Educational Psychology

Why Do Parents of Children with Autism Spectrum Disorder Have Lower Well-Being Than Typical Parents? An Analysis Based on Social Support, Psychological Resilience, and Parenting Stress

  • Zheng Jianhong1,2, Huang Jingmin3, He Chenglin4
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Abstract

This study aims to explore how social support, psychological resilience, and parenting stress influence the well-being of parents of children with autism spectrum disorder (ASD) and to conduct a comparative analysis with parents of typically developing children. The prevalence of ASD is rising globally, particularly in China, where the number of newly diagnosed cases is increasing significantly each year. This surge not only imposes substantial pressure on affected families but also challenges social and public health systems. Due to the long-term mental and financial burdens of caregiving, the well-being of parents of children with ASD is significantly lower than that of parents of typically developing children, and they are more susceptible to severe mental health issues. Although several national policies have been introduced to support the education and rehabilitation of children with ASD, the mental health of these parents has not received adequate attention. Therefore, this study focuses on analyzing the mechanisms through which social support, psychological resilience, and parenting stress influence the well-being of parents of children with ASD.
This research employed a questionnaire survey method, targeting 1,004 parents of children with ASD and 1,305 parents of typically developing children from 21 provinces, municipalities, and autonomous regions in China. The study utilized several instruments, including the General Well-Being Schedule (GWB), the Social Support Rating Scale (SSRS), the Parenting Stress Index-Short Form (PSI-SF), the Connor-Davidson Resilience Scale (CD-RISC), and the Psychological Resilience Questionnaire for Parents of Children with Special Needs. For data analysis, SPSS 22.0 was employed to conduct descriptive statistics, correlation analyses, and t-tests. Additionally, Mplus 8.3 was utilized to test chain mediation effects and between-group differences.
The results indicate that parents of children with ASD have significantly lower levels of social support compared to parents of typically developing children (t(2307) = 16.49, p < .001), and experience significantly higher levels of parenting stress (t(2307) = -13.21, p < .001). However, their psychological resilience is significantly higher than parents of typically developing children (t(2307) = -35.54, p < .001). Parents of children with ASD reported significantly lower levels of well-being compared to parents of typically developing children (t(2307) = 12.91, p < .001). Correlation analysis revealed that the well-being of parents of children with ASD is significantly and positively correlated with social support and psychological resilience (p < .01), while it is significantly and negatively correlated with parenting stress (p < .01). Further chain mediation analysis showed that social support indirectly enhances the well-being of parents of children with ASD by increasing psychological resilience and reducing parenting stress. The mediating effect of psychological resilience accounted for 74.1% of the total indirect effect, while the mediating effect of parenting stress accounted for only 6.7%. In contrast, for the group of parents of typically developing children, the mediating effect of psychological resilience accounted for 42.1% and parenting stress accounted for 47.6%. The results of the multiple-group structural equation modeling comparison revealed that the serial mediating effect of "psychological resilience → parenting stress" was significantly stronger in parents of children with ASD than in parents of typically developing children. This indicates that, compared to parents of typically developing children, parents of children with ASD rely more on psychological resilience as a pathway through which social support enhances their well-being.
The findings suggest that psychological resilience can effectively mitigate the negative effects of high parenting stress and serves as an essential internal protective mechanism for enhancing the well-being of parents of children with ASD. Social support plays a central role in the relationship between psychological resilience and well-being, indicating that strengthening the social support and psychological resilience of parents of children with ASD can effectively reduce their parenting stress and enhance their overall well-being. Therefore, social service providers and policymakers should focus on building a robust social support system for these parents and developing intervention programs aimed at enhancing their psychological resilience to better help them cope with the challenges of parenting and improve their quality of life.

Key words

parents of children with autism spectrum disorder / social support / psychological resilience / parenting stress / well-being

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Zheng Jianhong, Huang Jingmin, He Chenglin. Why Do Parents of Children with Autism Spectrum Disorder Have Lower Well-Being Than Typical Parents? An Analysis Based on Social Support, Psychological Resilience, and Parenting Stress[J]. Journal of Psychological Science. 2025, 48(6): 1418-1428 https://doi.org/10.16719/j.cnki.1671-6981.20250611

References

[1] 陈奕荣, 甘昭良, 吴忠良, 叶增编, 邵华. (2022). 家庭亲密度与孤独症儿童父母主观幸福感的关系:亲职压力的中介作用. 现代特殊教育, 425(2), 15-20.
[2] 段建华. (1996). 总体幸福感量表在我国大学生中的试用结果与分析. 中国临床心理学杂志, 4(1), 56-57.
[3] 费孝通. (2011). 乡土中国, 生育制度, 乡土重建.商务印书馆.
[4] 关文军, 颜廷睿, 邓猛. (2015). 残疾儿童家长亲职压力的特点及其与生活质量的关系:社会支持的中介作用. 心理发展与教育, 31(4), 411-419.
[5] 蒋娜娜. (2018). 特殊儿童父母亲职压力、应对方式与婚姻质量的现状及关系研究 (硕士学位论文). 重庆师范大学.
[6] 李力, 王若辰, 吴周康, 那琳娜. (2021). 社会支持对自闭症儿童家长生活质量的影响: 心理弹性的中介作用. 中国特殊教育, 251(5), 31-35.
[7] 邱俊杰, 郑剑虹. (2021). 领悟社会支持与自闭症儿童父母幸福感的关系——心理韧性的中介作用. 岭南师范学院学报, 42(6), 1-9.
[8] 汪向东, 王希林, 马弘. (1999). 心理卫生评定量表手册(增订版). 中国心理卫生杂志社.
[9] 王悦, 刘飞, 朱丹, 王影新, 谷洪涛, 万巧琴. (2024). 乳腺癌患者同伴教育者总体幸福感现状及影响因素研究. 中华护理杂志, 59(2), 191-197.
[10] 吴贵芊, 顾曼, 李晓雨, 陈晓帆, 郭永艳, 王琳琳. (2024). 穿越荆棘:孤独症儿童父母的养育压力研究述评. 现代特殊教育, 481(10), 36-45.
[11] 五彩鹿孤独症研究院. (2024). 中国孤独症教育康复行业发展状况报告V. 光明日报出版社..
[12] 肖水源. (1994). 社会支持评定量表的理论基础与研究应用. 临床精神医学杂志, 4(2), 98-100.
[13] 徐媛. (2010). 特殊儿童家长的心理弹性研究 (硕士学位论文). 华东师范大学, 上海.
[14] 于肖楠, 张建新. (2007). 自我韧性量表与Connor-Davidson韧性量表的应用比较. 心理科学, 30(5), 1169-1171.
[15] 袁正, 李玲. (2017). 婚姻与幸福感:基于WVS的中国微观数据. 中国经济问题, 1, 24-35.
[16] 钟于玲, 谢立春, 陈火星. (2016). 孤独症儿童家长社会支持需求与现状研究. 中国计划生育学杂志, 24(1), 24-27.
[17] 周浩, 龙立荣. (2004). 共同方法偏差的统计检验与控制方法. 心理科学进展, 12(6), 942-950.
[18] Abidin, R. R. (1992). The determinants of parenting behavior. Journal of Clinical Child Psychology, 21(4), 407-412.
[19] Al-Jadiri A., Tybor D. J., Mulé C., & Sakai C. (2021). Factors associated with resilience in families of children with autism spectrum disorder. Journal of Developmental and Behavioral Pediatrics, 42(1), 16-22.
[20] Alenezi S., Alsewailem N., Almubaddil B. A., Alshaya R. S., Alqahtani S. M. A., Aldossari S. A., Alsalhi S. M., & Alyahya A. S. (2024). Raising hopes, facing challenges: Understanding parental well-being in the midst of autism in Saudi Arabia. Behavioral Sciences, 14(7), 531.
[21] Ban Y., Sun J., & Liu J. (2021). Social support and subjective well-being in Chinese parents of children with autism spectrum disorder: The mediating role of perceived discrimination. Frontiers in Psychology, 12, 781794.
[22] Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51(9), 702-714.
[23] Brown M., Whiting J., Kahumoku-Fessler E., Witting A. B., & Jensen J. (2020). A dyadic model of stress, coping, and marital satisfaction among parents of children with autism. Family Relations, 69(1), 138-150.
[24] Campodonico C., Berry K., Haddock G., & Varese F. (2021). Protective factors associated with post-traumatic outcomes in individuals with experiences of psychosis. Frontiers in Psychiatry, 12, 735870.
[25] Connor, K. M., & Davidson, J. R. (2003). Development of a new resilience scale: The Connor-Davidson resilience scale (CD-RISC). Depression and Anxiety, 18(2), 76-82.
[26] Diener E., Oishi S., & Tay L. (2018). Advances in subjective well-being research. Nature Human Behaviour, 2(4), 253-260.
[27] Dong S., Ge H., Su W., Guan W., Li X., Liu Y., Yu Q., Qi Y., Zhang H., & Ma G. (2024). Enhancing psychological well-being in college students: The mediating role of perceived social support and resilience in coping styles. BMC Psychology, 12(1), 393.
[28] Estes A., Munson J., Dawson G., Koehler E., Zhou X. H., & Abbott R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375-387.
[29] Fong V., Gardiner E., & Iarocci G. (2021). Satisfaction with informal supports predicts resilience in families of children with autism spectrum disorder. Autism, 25(2), 452-463.
[30] Gao X., Lu X., & Drani S. (2023). Growing in adversity: A narrative study of resilience generation in Chinese families of children with ASD. Behavioral Sciences, 13(2), 136.
[31] Garrido D., Petrova D., Cokely E., Carballo G., & Garcia-Retamero R. (2021). Parental risk literacy is related to quality of life in Spanish families of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 51(7), 2475-2484.
[32] Halstead E., Ekas N., Hastings R. P., & Griffith G. M. (2018). Associations between resilience and the well-being of mothers of children with autism spectrum disorder and other developmental disabilities. Journal of Autism and Developmental Disorders, 48(4), 1108-1121.
[33] Han, F., & Gao, X. (2025). The challenge coping and resilience of the families of school-aged children with autism spectrum disorder in China: A qualitative study. Behavioral Sciences, 15(4), 409.
[34] Hayes A. F.(2018). Introduction to mediation, moderation, and conditional process analysis: A regression-based approach. Guilford Press.
[35] Iida N., Wada Y., Yamashita T., Aoyama M., Hirai K., & Narumoto J. (2018). Effectiveness of parent training in improving stress-coping capability, anxiety, and depression in mothers raising children with autism spectrum disorder. Neuropsychiatric Disease and Treatment, 14, 3355-3362.
[36] Ilias K., Cornish K., Kummar A. S., Park M. S. A., & Golden K. J. (2018). Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in Southeast Asia: A systematic review. Frontiers in Psychology, 9, 280.
[37] King G. A., Zwaigenbaum L., King S., Baxter D., Rosenbaum P., & Bates A. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care, Health and Development, 32(3), 353-369.
[38] Kostiukow A., Poniewierski P., Janowska D., & Samborski W. (2021). Levels of happiness and depression in parents of children with autism spectrum disorder in Poland. Acta Neurobiologiae Experimentalis, 81(3), 279-285.
[39] Lacomba-Trejo L., Mateu-Mollá J., Bellegarde-Nunes M. D., & Delhom I. (2022). Are coping strategies, emotional abilities, and resilience predictors of well-being? Comparison of linear and non-linear methodologies. International Journal of Environmental Research and Public Health, 19(12), 1-13.
[40] Lorenz, T. (2025). Assessing psychological capital: Construction and validation of the psychological capital inventory (PSI-16) using automated item selection. Gruppe. Interaktion. Organisation. Zeitschriftfür Angewandte Organisationspsychologie (GIO), 56(2), 1-13.
[41] Lynch F. L., Bulkley J. E., Varga A., Crawford P., Croen L. A., Daida Y. G., Fombonne E., Hatch B., Massolo M., & Dickerson J. F. (2023). The impact of autism spectrum disorder on parent employment: Results from the r-Kids study. Autism Research, 16(3), 642-652.
[42] Östberg, M., & Hagekull, B. (2000). A structural modeling approach to the understanding of parenting stress. Journal of Clinical Child Psychology, 29(4), 615-625.
[43] Pardo-Salamanca A., Rosa-Martínez E., Gómez S., Santamarina-Siurana C., & Berenguer C. (2025). Parenting stress in autistic and ADHD children: Implications of social support and child characteristics. Journal of Autism and Developmental Disorders, 55(7), 2284-2293.
[44] Pepperell T. A., Paynter J., & Gilmore L. (2018). Social support and coping strategies of parents raising a child with autism spectrum disorder. Early Child Development and Care, 188(10), 1392-1404.
[45] Seligman, M. E. (2019). Positive psychology: A personal history. Annual Review of Clinical Psychology, 15(1), 1-23.
[46] Sepa A., Frodi A., & Ludvigsson J. (2004). Psychosocial correlates of parenting stress, lack of support and lack of confidence/security. Scandinavian Journal of Psychology, 45(2), 169-179.
[47] Shin, H., & Park, C. (2022). Social support and psychological well-being in younger and older adults: The mediating effects of basic psychological need satisfaction. Frontiers in Psychology, 13, 1051968.
[48] Sippel L. M., Pietrzak R. H., Charney D. S., Mayes L. C., & Southwick S. M. (2015). How does social support enhance resilience in the trauma-exposed individual? Ecology and Society, 20(4), 10.
[49] Sisto A., Vicinanza F., Campanozzi L. L., Ricci G., Tartaglini D., & Tambone V. (2019). Towards a transversal definition of psychological resilience: A literature review. Medicina, 55(11), 745.
[50] Tedeschi, R. G., & Calhoun, L. G. (2004). Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry, 15(1), 1-18.
[51] Valicenti-McDermott M., Lawson K., Hottinger K., Seijo R., Schechtman M., Shulman L., & Shinnar S. (2015). Parental stress in families of children with autism and other developmental disabilities. Journal of Child Neurology, 30(13), 1728-1735.
[52] Ying, Y. J. (2024). Governing the family through parental responsibilisation and professionalisation: An analysis of the state 'family education' discourses in contemporary China. Social Policy and Society, 23(2), 300-313.
[53] Yu, X., & Zhang, J. (2007). Factor analysis and psychometric evaluation of the Connor-Davidson Resilience Scale (CD-RISC) with Chinese people. Social Behavior and Personality: An International Journal, 35(1), 19-30.
[54] Wang X., Zhai F., & Wang Y. (2023). Interplay between tradition and modernity: Stress and coping experiences among parents of children with autism in Beijing, China. Behavioral Sciences, 13(10), 814.
[55] Zeidan J., Fombonne E., Scorah J., Ibrahim A., Durkin M. S., Saxena S., Yusuf A., Shih A., & Elsabbagh M. (2022). Global prevalence of autism: A systematic review update. Autism Research, 15(5), 778-790.
[56] Zhao, M., & Fu, W. (2022). The resilience of parents who have children with autism spectrum disorder in China: A social culture perspective. International Journal of Developmental Disabilities, 68(2), 207-218.
[57] Zhou H., Peng J., Wang D., Kou L., Chen F., Ye M., Deng Y., Yan J., & Liao S. (2017). Mediating effect of coping styles on the association between psychological capital and psychological distress among Chinese nurses: A cross-sectional study. Journal of Psychiatric and Mental Health Nursing, 24(2-3), 114-122.
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